How to Understand the Autism Diagnosis Process 2

How to Understand the Autism Diagnosis Process

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If you are just pursuing an autism diagnosis for your child or you are in the beginning stages, here’s how to understand the autism diagnosis process. Be sure to take a look at more of my resources for dealing with the initial diagnosis.

 

How to Understand the Autism Diagnosis Process 3

Tests and Evaluations for the Autism Diagnosis Process

In the last ten years, there have been a multitude of new tests and evaluations for autism spectrum disorder. Some were designed to help with the screening or diagnosis while others were developed for gathering information for individuals already on the spectrum.

The ones that I want to talk about are the ones that are most widely and readily available:

NAME FORMAT YEAR CREATED
Asperger Syndrome Diagnostic Scale (ASDS) Questionnaire 2001
Autism Behavior Checklist (ABC) Questionnaire 1978
Autism Diagnostic Interview – Revised (ADI-R) Semi-structured interview 2003
Autism Diagnostic Observation Scale (ADOS) Direct Assessment 2000
Autism Observation Scale for Infants (AOSI) Direct Assessment 2000
Autism Spectrum Rating Scale Questionnaire 2010
Autism Spectrum Screening Questionnaire Questionnaire 1999
Checklist for Autism in Toddlers (CHAT) Questionnaire and Direct Assessment 1992
Childhood Autism Rating Scale – Second Edition (CARS2) Questionnaire 2010
Early Screening for Autism and Communication Disorders (ESAC) Questionnaire 2009
Early Screening of Autistic Traits (ESAT) Questionnaire 2006
Gilliam Asperger Disorder Scale (GADS) Questionnaire 2001
Gilliam Autism Rating Scale, 2nd Edition (GARS-2) Questionnaire 2006
Infant Toddler Checklist (ITC) Questionnaire 2002
Krug Asperger’s Disorder Index (KADI) Questionnaire 2003
Modified Checklist for Autism in Toddlers (M-CHAT) Questionnaire 2001
Pervasive Developmental Disorders Screening Test- 2 (PDDST-II) Series of questionnaires 2004
Screening Tools for Autism in Two Year Olds (STAT) Direct assessment 2000
Social Communication Questionnaire (SCQ) Questionnaire 2003
Social Responsiveness Scale Questionnaire 2002

 

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A General Timeline for the Autism Diagnosis Process

There is generally a three step process when it comes to evaluating for autism.

  • There is a concern (pediatrician, caregiver, family member, teacher, etc.) 
  • Referral (a parent, healthcare professional or therapist contacts someone who is qualified to do an evaluation)
  • Evaluation and recommendation (the evaluation is conducted and recommendations are made

In addition the diagnostic tests listed above, there are additional elements that go into an evaluation:

  • hearing screening
  • developmental/cognitive screening
  • speech/language assessment
  • parent interviews
  • child observations
  • genetic testing

For my daughter, we had her developmental screening, child observation in the developmental pediatrician’s office, and she also underwent blood work. 

Of those? The blood work traumatized her for life. To the point where entering a doctor’s office is difficult. 

I can still remember her observation and the sinking feeling in my stomach as the developmental pediatrician watched. There had been suspicions, certainly. But to see them coming to light and manifesting? It really wasn’t until then that we started to realize that something truly was not right.

Making Sense of the Autism Diagnosis with My New Diagnosis Toolkit

In my new autism diagnosis toolkit, I am including a checklist, printable timeline, and several other resources. These are the things I’d wish I’d had when my daughter was first diagnosed.

How to Understand the Autism Diagnosis Process 5

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Kori

Content Creator at Kori at Home
Kori is an autistic mom who also happens to have ADHD and Anxiety. She is currently located in Albany, NY where she is raising a neurodivergent family. Her older daughter is non-speaking autistic (and also has ADHD and Anxiety) and her youngest daughter is HSP/Gifted. As an empath, HSP, and highly intuitive individual, Kori brings her own life experiences as an autistic woman combined with her adventures in momming to bring you the day-to-day of her life at home. Kori provides life coaching services for neurodivergent women (and those who identify as women) as well as Oracle card reading, Tarot card readings, and energy healing.

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